What a complete and utter shitter of a week.

Things have been going wrong with both of my girls this week and it really has been a strain.

Alison was at the doctors for her immunisations on Tuesday which have now been delayed due to an ear infection, then she was tested for diabetes on Wednesday which thankfully came back negative and then she was off sick with a high temperature and vomited all over our front room on Friday.

Add to that the saga of Elizabeth who visited Out Patients three times this week. We came in on Tuesday to get her bloods done as she was pale and had no energy, thankfully they were fine. Then we were in on Thursday for our check up and she had to have tests because she was in contact with someone who had chicken pox and then Thursday night she was in so much agony with constipation and trapped wind we had to spend even more time with doctors on Friday getting the correct medication to help her. Friday night was spent in much the same way as Thursday which meant no sleep for either of us and then we woke up this morning to a raging 38.7 temperature which meant immediate admission to the Hospital for a minimum of 48 hours.

Unfortunately it doesn't end there. Not only is Elizabeth suffering from a high temperature but Wiggle has stopped working. She has had an Xray and it shows that it has become dislodged which means that they can't use it again. Wiggle will have to come out but with only two weeks worth of treatment left before they were going to take it out anyway we will have to wait until Monday to hear what Dr Rob wants to do. Whatever his decision I know it is for the best but I am almost hoping that they can find another way around putting a new line in. There is only one more harsh chemotherapy due on Wednesday and then the others that are due over the next two weeks would be able to be put through a cannula. Elizabeth has a cannula in now and I am not sure what I was so scared off, the doctors on the ward are a completely different breed to the ones who tried to put a cannula in her when we were admitted and it is a whole different experience. One that she would be ok to repeat.

Being readmitted to Ward 84 brings back all sorts of memories and the ward is now filled with new children. New children who are suffering from a variety of different forms of cancer but who are all seriously ill. Its always difficult to immerse yourself with new parents, not knowing the prognosis of their children's illness you never want to ask just in case you get the bad news. The hardest part of today was when earlier this evening a mum and her young son were admitted into the bed near ours. It is there first night and they came up from A & E. She doesn't have a diagnosis, not even a small inkling of what she might face but she was asking me about Elizabeth. As we spoke I could see the panic slowly rise up in her face. The feeling when you realise that you have been admitted onto the Cancer ward. I remember when the word Leukemia was mentioned and my world came crashing down around me, I remember the sheer terror that my baby was going to die and I remember the loneliness on those first few nights. I cant take away her fear or change the diagnosis but I will help me and try to stop her feeling lonely because I wish someone had done that for me.
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Why is it so sunny when we are stuck indoors?
 


Comments

02/02/2013 23:11

Oh no... sounds like a horrendous week you have had. I really admire what a strong lady you are. If there is anything I can do (no matter how little) to lighten the load then I'm just a message away. Sending good wishes. xx

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02/02/2013 23:19

sounds like a completely rubbish time you're having at the moment, thinking of you xx

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02/02/2013 23:24

What a crappy week :( I hope you home soon and both girls are feeling better xx love you u all.

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02/02/2013 23:28

What a horrendous week! I just can't imagine how you are maintaining any semblance of normality at the moment and I really hope next week is better. X

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02/02/2013 23:37

Oh Laura, I'm so sorry to see your struggles, yet despite them, you are able to help that other lady. Thinking of you XX

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02/02/2013 23:53

Oh no, what a shitty week, sending lots of love x x x

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02/02/2013 23:54

Thinking of you all Laura, if there's anything I can do or you just need a chat you know where I am xxx

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02/02/2013 23:59

Oh Laura, what a crappy, horrible week for you all. Please let me know if there is anything you need. Thinking of you all xxx

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03/02/2013 00:02

What a totally rubbish week you've had. Hoping next week is better :0(

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03/02/2013 07:26

:( so sorry you and your girls are having such a horrible time. I can only imagine how awful it must be and your writing makes it feel so real. I felt the panic of the poor Mum who doesn't yet know what's to come as I was reading. Sending you lots of love and wishes that this will all be a distant memory so very soon x

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Joanne (mummy2five)
03/02/2013 08:34

Thinking of you all and hoping this week is a much better week for you xxx

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03/02/2013 08:41

Oh Laura I'm so sorry that it has been so crap. As a regular hospital visitor ourselves I cannot begin to imagine what you guys see and go through. Thinking of you. x

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Jane
03/02/2013 10:07

Oh laura, how crap! You a such a brave woman. Keep that chin firmly up x x x

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03/02/2013 18:48

What a shite week lovely. You are all so strong and I really admire that! I hope things get better from now on, love to all xxxxxx

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03/02/2013 21:36

Oh heck! Sending bug hugs. You will get through this, all of you. Be strong. You are both in the right place. x x

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